Your words about the horrors are so fresh and humor-filled. I know it's a double burden to convey and soften the experience for others when it really just sucks, but I'm so glad for the good you're having on the other side of lake time.
Oooohhhhh. I'm so glad you wrote this. It's really interesting and helpful to know what your flare-up/down cycle looks and feels like. And I'm so glad the stent is making such a difference. Also it was one of the highlights of 2026 so far to be able to SEE YOU IN PERSON and spend time with you!!! Lucky us!!!
Oh my. Your descriptions are so full of humor that it’s easy to forget the severity of the challenges you face during these flare-ups. You know your body well by now, and you have confidence that this too shall pass. Which is some comfort.
Thank you for writing this. I have wondered what a flare up looks and feels like. Do you dread them now that you can somewhat predict them? Do you still have poor me moments or have you landed in stoicism? I am so grateful for Andy and the creative love that you share.
I will sometimes look ahead and think “But I don’t WANT to do that again!”, but in general it’s a relief to be able to predict and plan accordingly. It would be so much worse if they came randomly; my best guess is that this is just the life cycle of the zoster virus infection when mediated by the antivirals I’m on. 🤷🏻♀️
Oh, Christina, I'm glad that you have not lost your sense of humor through all of this. And I would think that your being able to describe so accurately the before-during-after feelings of a flare-up could be helpful to the medical community and to others who may experience this, but who are not so self-observant or not as good at describing their experiences. My prayer is that your flare-ups are more rare and last fewer days.
Thank you! And yes, I’ve had several neurologists tell me it would be helpful if I would write a book about my experiences. I think of these posts as placeholders of a certain sort - trying to capture certain moments or experiences before they slip away.
Your words about the horrors are so fresh and humor-filled. I know it's a double burden to convey and soften the experience for others when it really just sucks, but I'm so glad for the good you're having on the other side of lake time.
Thank you- I you know! 💞
💗💗💗
Oooohhhhh. I'm so glad you wrote this. It's really interesting and helpful to know what your flare-up/down cycle looks and feels like. And I'm so glad the stent is making such a difference. Also it was one of the highlights of 2026 so far to be able to SEE YOU IN PERSON and spend time with you!!! Lucky us!!!
Oh my. Your descriptions are so full of humor that it’s easy to forget the severity of the challenges you face during these flare-ups. You know your body well by now, and you have confidence that this too shall pass. Which is some comfort.
Thank you for writing this. I have wondered what a flare up looks and feels like. Do you dread them now that you can somewhat predict them? Do you still have poor me moments or have you landed in stoicism? I am so grateful for Andy and the creative love that you share.
I will sometimes look ahead and think “But I don’t WANT to do that again!”, but in general it’s a relief to be able to predict and plan accordingly. It would be so much worse if they came randomly; my best guess is that this is just the life cycle of the zoster virus infection when mediated by the antivirals I’m on. 🤷🏻♀️
Oh, Christina, I'm glad that you have not lost your sense of humor through all of this. And I would think that your being able to describe so accurately the before-during-after feelings of a flare-up could be helpful to the medical community and to others who may experience this, but who are not so self-observant or not as good at describing their experiences. My prayer is that your flare-ups are more rare and last fewer days.
Thank you! And yes, I’ve had several neurologists tell me it would be helpful if I would write a book about my experiences. I think of these posts as placeholders of a certain sort - trying to capture certain moments or experiences before they slip away.